Andy Tranfaglia, 32, watches Scooby Doo while sitting on the couch at his parent’s home June 20, 2021. Tranfaglia has a rare inherited genetic disorder called Fragile X Syndrome, which impacts a single protein on the X chromosome and causes development delays.
In the morning before going to his day program, Andy Tranfaglia empties the dishwasher at his parent’s request.
Charlie Palmer, a daytime staff member with Shared Life Collaborative, makes Andy Tranfaglia laugh while driving around West Newbury, Monday, June 21, 2021.
Piece by piece, Andy Tranfaglia separates and throws away the recycling at the West Newbury recycling center.
Charlie Palmer, a daytime staff member with Shared Living Collaborative, guides Andy Tranfaglia down the aisle to the sandwich section after picking out a Fresca for lunch.
Andy Tranfaglia leads Clover back to barn as trainer Ray Hackett, watches closely.
After cleaning out the barn stalls, Andy Tranfaglia helps feed the ponies at a local barn as part of his work program.
Andy Tranfaglia squats in the grass while waiting to transition to another daytime staff with Shared Living Collaborative for one-on-one care.
Katie Clapp, left, and her husband, Mike Tranfaglia, background, have worked for decades to find the best way to treat their son Andy's condition.
Andy Tranfaglia covers his face while squatting near the refrigerator as his father Mike Tranfaglia looks for food to prepare for Andy's dinner.
Just after 6:30 p.m., Andy Tranfaglia says good night before going to bed June 21. According to his mother, Katie Clapp, Andy prefers to have very little in his room. She says it took years of working with him for Andy to be OK with leaving his shoes on the shelf. Andy prefers to keep most of his things in the living room.
Andy Tranfaglia eats dinner on his favorite couch while watching Scooby-Doo and playing a Sesame Street game on his iPad.
Katie Clapp sits with Andy to make a call before eating dinner.
Andy Tranfaglia smiles back at his mother, Katie Clapp, as she drops him off at a barn for work through his day program with Shared Living Collaborative on June 20 in West Newbury, Mass.